I know I have not posted in a bit, but I have been very focused on two very exciting endeavors (with a couple more on the back burner). I did however want to post a very quick thank you to all of those who have supported me as I prepare for this years Time To Fly in Saint Paul.  Although the event is a walk, I have registered for the run as a personal challenge to myself.  I am incredibly grateful to everyone who has helped me in my fundraising efforts as well as those who have made the commitment to join our team.  The race is June 30th on Harriet Island and so there is still time to register or donate if you would like.  This year we have a very rare opportunity to double our fundraising efforts thanks to a matching grant offered through EBMRF and JGSF.  That means that every dollar that we raise will be matched and 100% goes to EB research.  That my friends is pretty incredible.  Please consider supporting me and visit my page:
I have also been working on an awareness campaign that was “launched” on May 27th to honor Bella Ringgold’s 3rd birthday.  I say launched because as soon as people received the kits that I put together , it was obvious that I was far from done. This was just the beginning of something that had the potential to be amazing!  I have received so many requests to open ordering again and how could I possibly say no to something that would bring about awareness and potential research dollars?  Well, I couldn’t, so if you would like to participate in the I Refuse awareness campaign, please check it out…
Your Kit will look a little like this…
I think my little man says it best…

http://www.youtube.com/get_player

Thank you to all of you who are committed and dedicated in the fight against EB!
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