Yesterday was quite bittersweet as I said my final goodbye to sweet little Quinny. It was an incredible honor to be there with her amazing family and friends…her Butterfly Army. Such a precious soul who brought an entire community together to fight. In her short time here, she inspired so many hearts to take action. Because of Quinn, thousands of people have joined the battle against EB. And although her time on earth is through, her purpose, her legacy continues. This fight is far from over. Quinn’s story will continue to be told and she will continue to inspire people to follow their hearts and fight for those who suffer.
Each day, Quinn was forced to endure EB and the pain and suffering that it brought. Despite this, Quinn would smile her amazing smile and bring tremendous joy to those around her. Because of EB, Quinn’s time here was much too short. However, the lessons she taught us are immeasurable. They are lessons that we must now continue to share with others. We much love one another without judgement; we must show compassion and kindness. We must be joyful and embrace each and every moment. Above all, we must have faith.
Quinn, thank you for shining your light into my life and reminding me to believe & to find hope in every situation. I love you.
I know that there are so many who have followed Quinn’s story who what to get involved and help. Many of you know that Quinn was part of clinical trial that is being done at the University of Minnesota. This summer, there is an awesome event being hosted my the Children’s Cancer Research Fund called
Time to Fly. There is a special team dedicated to the research being done and I am excited to be a part of that team. If you would like to participate or support TEAM PUCK, please visit my Time To Fly Page here: Time to Fly – Christie Zink’s Team Puck Page
Someday we will find a cure, and sweet Quinn…you are a part of that cure!