I have spent the better half of the day in tears…I did my best to distract myself, but eventually my thoughts kept coming back to a little boy wrapped in bandages lying in the arms of his mommy…enduring a pain that none of us can imagine.   The pain of EB destroying the little he has left physically and mentally.  I have come to the realization that what I have been dreading since falling in love with this sweet boy was becoming a reality.  And although I do not understand the reason behind his suffering, I do know this, it has all been for us. For we have benefited so greatly from his being.
Tripp Roth has touched the lives of so many and he has brought tremendous change to the world.  He has captured the hearts of thousands with his amazing courage, beautiful personality and his glorious spirit.  Through him we have opened our hearts and learned to be more compassionate and kind.  He has taught us about unconditional love and faith…some of the greatest lessons I have ever learned.  Tripp has given me a purpose, he has inspired me to be a part of something bigger than myself and to try and make a difference. He touched me in such a way that I knew I was forever changed, and there was no going back.  There is something else…aside from teaching me these important lessons, he has also given me one of the greatest gifts that I have ever known, courage.  That may sound odd to some of you, but it is so very true.  Before Tripp, I lacked the confidence. As hard as it is for me to admit, I was afraid…always worried about what others would think, afraid I would fail.  I never took chances.  But, some how Tripp has given me the courage to fight for something that I beleive in without worrying about being judged or ridiculed.  He has given the me courage to speak up and be a voice for all of those who cannot speak.  The courage to make try to make a difference and touch the lives of others.
So, now here I sit trying to come up with something poignant and eloquent to say, but my emotions get the best of me and I have nothing…except, thank you.  Thank you Tripp for shining your light and blessing me with your beautiful spirit.  You have been such an amazing gift and I am so incredibly grateful.  I will never forget how you have touched my life and brought such a beautiful change.  I will forever remember your smile and your spirit.  I love you,  I am honored to know you and to have been a small part of this journey. 

Sweet boy, I am praying for your comfort and peace….as much as I hate to see you go, I know that you deserve to finally be free from your pain and agony.  I love you so very much and I promise you that I will never forget what you have taught me and I will continue to spread your light where ever I go.  I will not allow your suffering to be in vain, I will not stop fighting for you until EB is no more. 
I think this excerpt says it best:
…and through his suffering and God’s strength, he unlocked the goodness and love in people’s hearts. For so many people dropped their differences and came together to show their love. Priorities became properly aligned. People gave from their hearts. Those that were always too busy found time. Many began new spiritual journeys, some regained lost faith – many came back to God. Parents hugged their children tighter. Friends and family grew closer. Old friends got together and new friendships were made. Distant family reunited, and every family spent more time together. Everyone prayed. Peace and love reigned. Lives changed forever. It was good. The world was a better place. The miracle had happened. God was pleased.
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