In 2011, I was given an amazing gift, the gift of a precious little spirit named Tripp Roth. Tripp was born with a rare genetic skin condition called Epidermolysis Bullosa (EB). The slightest friction causes excruciatingly painful blisters. There is no cure and those who suffer from this condition are forced to live wrapped in bandages enduring constant pain. Most do not survive to see their first birthday. It is cruel and devastating; it profoundly affects all those who must face it, including caregivers.
Tripp lost his fight against EB on January 14th 2012 in the arms of his loving mommy. He does however continue to shine in the thousands of lives that he has touched. It is my hope that this journey does not end here. That this is only the beginning. I am committed to help in the effort of spreading awareness, being a voice for these precious children and eventually finding a cure to EB.
Tripp had an amazing spirit about himself that has spread to so many hearts. He faced each new day with amazing strength and grace despite his pain. Tripp most certainly shined his little light so brightly and it has inspired me to create this project and capture other little lights shining, providing families lasting memories through portraiture. This Light Light provides custom portraiture services to families who are facing a life altering diagnosis.
If you know of a family that may benefit from this service, please email me at firstname.lastname@example.org